Rare condition: Jennifer Lloyd has to avoid watching scary TV shows

Like most children her age, Jennifer Lloyd loves watching her favourite programmes on TV.

But when a scary bit is about to happen the ten-year-old has to leave the room quickly - because the sudden shock could kill her.

Jennifer is one of just six known sufferers of polyglandular Addison's disease, which causes her to become ill whenever she is surprised or shocked.

The condition means she is unable to produce adrenaline in response to alarm or any sudden form of emotional or physical stress.

Instead her body goes into shock and her organs could shut down unless she receives medical treatment.

It means Jennifer can only watch television with the permission of her parents, who also watch with her then ensure she leaves the room if they fear something startling is about to happen.

Since Jennifer was diagnosed three years ago, her parents Amanda, a nurse, and Robert Lloyd, 47, an engineer, of Prestwich, Greater Manchester, have been desperate for more information on the disease.

Named after Dr Thomas Addison, who first described it in 1855, the condition affected U.S. president John F Kennedy.

The polyglandular form of the disease is far rarer than the ordinary one.

The inability to produce adrenaline has a knock-on effect on blood pressure, major organ function and salt levels.

Jennifer suffers from stomach and kidney problems as a result of the condition and has to take a complex range of medication to help her body cope.

Her parents also carry an emergency kit to provide extra medication-when required.

Mrs Lloyd, 44, said: "When anything particularly good or bad happens, we have to handle it very carefully so it doesn't surprise Jenny.

"We always have to expect the unexpected."

 


Jennifer was diagnosed with polyglandular Addison's disease when she fell ill with severe stomach ache aged seven.

 

However, Jennifer is able to live a relatively normal life and particularly enjoys Harry Potter.

Mrs Lloyd said: "With something like Harry Potter we have to watch it with her.

"There was one scene in the Chamber of Secrets where all the spiders came down and she kind of got a bit worried, saying she had to leave.

"But we just tried to reassure her that it's not real. We gave her some more medication and were able to calm her down."

She added: "Jenny has learned a lot about her condition in the last few years and we are all really proud of how she deals with it."

The family have set up a campaign, Jenny's Pennies, to raise cash for research into the condition.


Jennifer's condition means her mother Amanda must be prepared for any mild shock.

 

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Source: http://www.dailymail.co.uk


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Comments: 4

Guest
u no wat i know this young girl and she goint thourgh alot

Guest
She's my cousin

Guest
lollaughing

Guest
crying jenny babee i love you wink

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